Neurobiological and translational fatigue research laboratory
University of Leeds, United Kingdom
We saw the launch of Ensnared: The Inescapable Reality of Fatigue during UCL World Stroke Day Forum.
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ENSNARED is a collaborative arts and neuroscience project that has been created by artist Sofie Layton in collaboration with stroke survivors, and neuroscientists Dr Anna Kuppuswamy, and Dr William De Doncker.
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ENSNARED involves a series of online digital artworks and an immersive physical installation with sculpture, sound and projected imagery, inviting an audience to experience the visceral reality of life with post-stroke fatigue. In future, the ongoing project is going to be realized in the physical sense.
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The themes were developed through a series of narrative workshops with stroke survivors. The resulting stories and metaphors have inspired the work in its different iterations. Through a series of workshops, participants explored the multi-sensory nature of fatigue and ways of expressing this through narrative, metaphor and artistic media.
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Our aim is to make the invisible condition of post-stroke fatigue visible with the hope of informing scientific research and deepening everyone's understanding of the physical and emotional challenges.
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To view the exhibition website or the find out how the forum went please link on the link below.
Ensnared: The Inescapable Reality of Fatigue
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A digital Forum run by UCL for stroke survivors and their loved ones will return in 2021 as a series of free, online events, taking place between Monday 25th to Friday 29th October.
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Now in its fourth year, UCL World Stroke Day Forum aims to empower stroke survivors to influence the future of stroke research at UCL.
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The Forum was traditionally run as a one-day event, where over 200 stroke survivors and their loved ones participated in interactive talks and workshops in a central London venue. Since the COVID-19 pandemic began in 2020, the Forum has been held entirely online as a week- long series of events.
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Building on the success of last year, the 2021 Forum will again take place online, kindly supported by The National Brain Appeal and Wellcome. There are 15 digital sessions, each designed to encourage open dialogue between researchers, clinicians, charities, stroke survivors and carers or loved ones.
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The launch of Ensnared: The Inescapable Reality of Fatigue - a bold and emotive art exhibition from artist Sofie Layton and UCL’s Effort Lab. This artistic and scientific research project explores experiences of living with post-stroke fatigue through survivors’ own metaphors and narratives.
Different Strokes organised a set of FREE webinars with expert led talks on all aspects of stroke recovery.
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William gave a presentation on what it is like to live with Post-Stroke Fatigue and how best to manage it. He also answered some of the most common questions around fatigue.
Different Strokes Virtual Conference 2020
UCL World Stroke Day Forum 26th - 30th October 2020
The website of the UCL World Stroke Day Forum is now live! Take a look and sign up for events now.
A week long forum highlighting current research and rehabilitation projects in Stroke, the UCL World Stroke Day Forum brings together clinicians, researchers and charities to share their knowledge and engage with stroke survivors and loved ones across the UK.
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Visit the link below for a host of talks from UCL researchers and charities, and to sign up for interactive Q&As, workshops and informal 'meet and greets' sessions to allow you to delve deeper into topics during the Forum week.
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ENSNARED - THE INESCAPABLE REALITY OF FATIGUE
A series of online digital artworks and an immersive physical installation with sculpture, sound and projected imagery, inviting an audience to experience the visceral reality of life with post stroke fatigue.
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This event will take place via Zoom. All ticket holders will be contacted with details of how to access the zoom link, a few days prior to the event.
ESEMINARS 2020, UNIVERSITY OF THE BALEARIC ISLANDS, SPAIN
Our research continued as usual during Covid-19 quarantine measures in the UK.
William De Doncker presented our work on post-stroke fatigue during an eSeminar organised by Dr Alejandro Galvez-Pol. For more information visit: https://evocog.org/2020/03/03/e-seminars/.
To see the talk titled "Can altered perception explain chronic pathological fatigue?" click on the link below.